January 5, 2013

Beautiful words and comforting!

I am not sure what I was trying to google the other day but I came across the following website: http://www.mosaicdownsyndrome.com/inspirat.htm...  Childen with Mosaic Down syndrome have two distinct cell groupings. In some cells there is a total of 46 chromosomes, which is the “typical” group. In other cells there is an extra copy of the chromosome #21, making 47 cells total for this group. This website has two poems that touched my heart and I wanted to share.

A Story contributed by Erma Bombeck
This year, nearly 100,000 women will become mothers of handicapped children. Somehow I visualize God  hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes,  he instructs his angel to make notes in a giant ledger.
"Armstrong, Beth, son, patron saint, Matthew."
"Smith, Marge, daughter, patron saint, Cecillia."
"Rutledge, Carrie, twins, patron saint...give her Gerard. He's used to profanity."
Finally he passes a name to the angel and smiles, "Give her a handicapped child". The angel is curious. "Why  this one, God? She's so happy." "Exactly," says God. "Could I give a handicapped child to a mother who does  not know laughter? That would be cruel."
"But has she patience?" asks the angel."
"I don't want her to have to much patience or she will drown in a sea of self-pity and despair. Once the shock  and resentment wear off she'll handle it." "I watched her today. She has that feeling of self and independence  that is so necessary in a mother. The child I am going to give her has his own world. She has to make it live in  her world, and that's not going to be easy."
"But Lord, I don't think she even believes in you," God smiles. "No matter. I can fix that. This one is perfect. She  has just enough selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods, "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman  who I take for granted a 'spoken word.'   She will never consider a 'step' ordinary.  When her child says  'Momma' for the first time, she will be present at a miracle and know it!   I will permit her to see clearly the things  I see...cruelty, ignorance, prejudice...and allow her to rise above them. She will never be alone. I will be at her  side every minute of every day, because she is doing my work as surely as if she were here by my side."
"And what about her patron saint?" asks the angel, pen poised in mid air."
God smiles, "A mirror will suffice."         
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Heaven's Very Special Child

A meeting was held quite far from Earth,
"It's time again for another birth."
Said the Angels to the Lord above,
"This special child will need much love."

Her progress may seem very slow,
Accomplishment she may not show;
And she'll require extra care
From the folks she meets down there.

She may not run or laugh or play.
Her thoughts may seem quite far away.
In many ways she won't adapt
And she'll be known as handicapped.

Oh let's be careful where she's sent.
We want this life to be content.
Please, Lord, find the parents who
Will do a special job for you.

They will not realize right away
The leading role they are asked to play.
But with this child sent from above
Comes stronger faith and richer love.

And soon they'll know the privilege given
In caring for the Gift from Heaven.
Their precious charge, so meek and mild,
Is Heavens Very Special Child.

The Magic of turning TWO!

Ever since Amalia  turned two it has been magical, she is reaching her milestone with grace. Some of the milestone she is reaching are: Tummy crawling, holding her standing posture for nine minutes, she is pivoting on her tush, she is grabbing more object and is studying shapes very carefully, she is verbal, she says, Dada, cow, duck, chicken, Si (yes), star, makes the phonics sounds of the letter "f", "e", "h","a", "c", "k" "m" and makes the coolest "oh" face!...She loves songs some of her favorite songs are: the Itsy Bitsy Spider, Patty Cake- Patty Cake Bakers Man, If you are happy and you know it clap your hands, and two spanish song called "Linda Manita" (Beautiful Hands) and PonPon el dedito en el pilon. She says hi, every time she sees someone whom she feels are worth the greeting and when the phone rings she says: hi....She even takes my cell phone and says hi..I love how she is becoming more aware of her surroundings! With the magical two it also comes with TEMPER TANTRUM! Brushing her hair and teeth is like having a wrestling match. If she is not fed quick enough she has a hissy fit. She has food preference..Alfredo sauce is her favorite DO NOT give her Marinara or Meat Sauce she will spit it out and give you a not so happy face. Now with no further a do, here are some of Amalia videos enjoy.

I know with a blink of an eye she will be walking and running and I will be her biggest cheerleader in the crowd!