March 14, 2012

A Day To Celebrate Life..

           We celebrated Amalia's health on Saturday. March 10, 2012 made one year Amalia had her open heart surgery and for more celebration we attended a special clinic for special people. The Developmental Center in Orlando creates a once a year special clinic for special people, and on Saturday it was an all Down Syndrome Day. The clinic had professional doctors, therapists, counselor that specialises with individual with Down Syndrome. It was our first time in such great event and I felt as if I was attending a blind date, I was nervous had butterflies in my stomach. I had my notebook with all the questions I wanted to ask the specialist and I had my camera because I wanted to take picture of every moment that I had.  We walked inside the clinic and it was a fairy land. Stars where hanging from the ceiling, a gazebo in the center of the place, a big, huge bronze statue of Mickey mouse riding a horse. I saw so many parents with delicious looking babies and adults of all ages. My first doctor I saw was the geneticist, and he said something very interesting..."Down Syndrome is a genetic disorder NOT hereditary, it does not mean the same. I commented  to the doctor I have a cousin with Down Syndrome who is 29 years old, and he said that was coincidence because it is not HEREDITARY but GENETIC. After the geneticist doctor we went to see, a dentist because my little diva is 19 months have no teeth...he advice, to give her time, it is typical to have no teeth and she probably get her first one when she turns two. We continue walking around, and she had her ear checks and she did great. We had so much fun that I forgot to take pictures of each doctors she saw, so I took some. By the way, they had a playroom with two volunteers, and Ethan had so much fun he did not want to leave. Cookie the Clown made cool animals out of balloons and did cool art with face painting...Ethan requested a shark on his left arm. It was an amazing day and seeing the other children and the milestone they reached, it made me excited to know Amalia would be getting there at her pace, but she will get there.


Song of Solomon 4:7

You are altogether beautiful, my love; there is no flaw in you.

Genesis 1:27

So God created man in his own image, in the image of God he created him; male and female he created them.

March 6, 2012

I would not cry over spill milk, ok maybe a little.

   Some friends came over from out of town and they are staying with us for a week. Therefore a weekend of awesomeness was planned.  Before we head out to Downtown Orlando, we stopped to eat at a Dominican Restaurant. After great meal and great conversation I get up and take my handbag when milk was spilling all over the floor..I take a look inside my bag, one of Amalia's bottle with milk spilled all over my brand NEW hand bag. Everything got wet, diaper, wallet and all the goodies we as woman and mommy carry.. I ran to the bathroom to clean it....and as much as I wanted to "go back home and go no where, i was not going to let spilled milk ruin my day" I cleaned it, air dry every little thing and headed to the car. The good thing I had a Thermos with milk for Amalia just in case. As soon as I got in the car, i have a Victoria Secret, body splash and I moist a towel and put it inside my handbag because we all know milk is good for you but the smell of milk is not very pleasant.
      We arrived at Downtown Orlando and just seeing so many people and children makes me happy. I am from New York so being in a crowded place makes me happy, makes me feel alive. We went inside the Lego Store play with some Lego's and then we enter the Disney store and tried on some funny hats and mouse ears. After walking around we decided to head to Dave and Buster and have some more fun. Ethan had a blast pretending he was driving the cars...

Monday the weather was perfect for SEA WORLD..Yeahhh!!!! We arrived thinking it is Monday the park is not going to be packed, we were so wrong. We went in and had a blast. Many families go to the beach a lot or to a specific playground, we do Sea World A LOT...Ethan loves the dolphin and Shamu shows. Also, because he is quite tall for a three year old, he got to ride the Shamu roller coaster for kids, he rode the tea cup and he was just all smile. Amalia rode the carousel, she fell asleep, other than that we had a great great time.

What a cute little mouse

If I dye my hair this color you, my hair will be just like that.
Cute mouse

He is modeling his new mickey mouse goofy sunglasses
Love his smile.
Our guest from Colombia.
This is our " pucker up" look.

Proverbs 17:22

A joyful heart is good medicine, but a crushed spirit dries up the bones.

Psalm 126:2

Then our mouth was filled with laughter, and our tongue with shouts of joy; then they said among the nations, “The Lord has done great things for them.”

Psalm 16:8-11

I have set the Lord always before me; because he is at my right hand, I shall not be shaken. Therefore my heart is glad, and my whole being rejoices; my flesh also dwells secure. For you will not abandon my soul to Sheol, or let your holy one see corruption. You make known to me the path of life; in your presence there is fullness of joy; at your right hand are pleasures forevermore.

March 3, 2012

I chased her down Walmart

 I was in Walmart on Thursday food shopping and house shopping. While I was in the towel section I saw an adorable boy that caught my eyes and from where I was standing he showed characteristics of having Down Syndrome, so I placed my towel back on the shelf and chased the woman with the boy down Walmart. I felt so strange doing such pursuit but once I saw she was heading to the electronic section and sort of yelled out " excuse me...excuse me" and she stopped and looked back. I kindly approached her with a smile just to make her comfortable. I asked her "does you son have..." and before me saying Down Syndrome she smiled and said yes.. I told her "My daughter has.. and before I finish the sentence she smiled and said I want to see her. Her son is a well speaking active six year old who loves babies...we exchanged number and will be calling her in the future to set up a play date.

I have read blogs about parents who have children with Down Syndrome who were at a shopping center and saw from a far a child with Down Syndrome and follow them through the place just to see how that particular child is or just because and I remember saying I would never NEVER do such a thing, but like Justin Bieber sings "Never say Never."


2 Timothy 3:16

All Scripture is breathed out by God and profitable for teaching, for reproof, for correction, and for training in righteousness